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    The main IP address: 13.32.243.194,Your server United States,Norwalk ISP:Xerox Corporation  TLD:org CountryCode:US

    The description :jump to content dinet site about us about us advisors dinet disclaimer information resources pots ncs paf msa general dysautonomia eds studies links newsletter - dysautonomia news video: living with p...

    This report updates in 31-Jul-2018

Created Date:2002-06-06

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jump to content dinet site about us about us advisors dinet disclaimer information resources pots ncs paf msa general dysautonomia eds studies links newsletter - dysautonomia news video: living with pots find a physician physicians find a physician advisors physician brochures for the medical community get involved join dinet volunteer physician brochures how can i help? donate forum & community support groups member stories forums calendar activity all activity search guidelines online users assistance become a forum member leaderboard more more -- existing user? sign in sign in remember me not recommended on shared computers sign in anonymously sign in forgot your password? sign in with facebook sign up pages all content advanced search all activity home dysautonomia is a term used to describe abnormal functioning of the autonomic nervous system dysautonomia means dysregulation of the autonomic nervous system. dysregulation of the autonomic nervous system can produce the apparent malfunction of the organs it regulates. for this reason, dysautonomia patients often present with numerous, seemingly unrelated maladies. symptoms are wide ranging and can include problems with the regulation of heart rate, blood pressure, body temperature and perspiration. other symptoms include fatigue, lightheadedness, feeling faint or passing out (syncope), weakness and cognitive impairment. autonomic dysfunction can occur as a secondary condition of another disease process, like diabetes, or as a primary disorder where the autonomic nervous system is the only system impacted. these conditions are often misdiagnosed. over one million americans are impacted with a primary autonomic system disorder. the more common forms of these conditions include postural orthostatic tachycardia syndrome (pots)/orthostatic intolerance (oi), neurocardiogenic syncope (ncs), pure autonomic failure (paf) and multiple systems atrophy (msa). dinet provides information and personal stories on several types of dysautonomia. you may download our informational brochure here. dysautonomia information network do you have a question for our medical expert's? dinet's medical advisors are physicians who specialize in different aspects of dysautonomia treatment and research. we are honored that these dedicated professionals share their time and knowledge with us and you! if you have a question that you would like answered by our advisory team, please send it to [email protected] questions are posted in our quarterly newsletter. discussion forum: trending topics 0 sending messages to members - admin question by weary started 15 minutes ago 0 dreading tomorrows blood tests by weary started 25 minutes ago 11 jerks and involuntary movement by zerohours000 started thursday at 11:30 pm 3 nueropathy flare up and new carpet? help by art3 started june 18 13 icy toes by wintersown started sunday at 10:11 pm ongoing studies & study information new: recruiting: the investigators propose to conduct a safety, tolerability and early proof of concept efficacy study of phosphatidylserine in patients with fd. the long-term goal is to find an effection nutritional therapy that will improve the quality of life for patients with fd and alter disease prognosis contact & participation information is available - https://clinicaltrials.gov/ct2/show/nct02276716?cond=dysautonomia&rank=5 new: recruiting: pet imaging study of neurochemical and autonomic disorders in multiple system atrophy (msa) from the university of michigan this study aims to better understand the patterns and timings of nerve degeneration relatively early on and how it affects symptoms and progression. contact & participation information available https://clinicaltrials.gov/ct2/show/nct02035761?recrs=ab&cond=dysautonomia+orthostatic+hypotension+syndrome&rank=4 recruiting: a study of pyridostigmine in postural tachycardia syndrome. this is a 3-day study being conducted by the mayo clinic comparing pyridostigmine vs placebo in the treatment of pots. http://www.mayo.edu/research/clinical-trials/cls-20128843 recruiting: two new studies open for patients with msa. the nyu dysautonomia center has 2 new clinical trials to test new drugs that are being developed for the treatment of oh in patients with msa. https://dysautonomiacenter.com/2017/04/10/two-new-studies-open-for-patients-with-msa/ recruiting: vagal stimulation in pots- the autonomic inflammatory reflex (pilot 3) study to investigate how the electrical stimulation of a nerve in the skin of your ear lobe (transcutaneous vagal nerve stimulation) affects the way your autonomic nervous system controls your heart rhythm. visit https://www.rarediseasesnetwork.org/cms/autonomic/6111 recruiting: clinical autonomic disorders: a training protocol is a study to learn more about dysautonomias to the specific purpose of developing training protocols to help new physicians understand the illness and to better diagnose patients. to participate in the study or read more about it, visit our studies page or go directly to the clinical trials site . recruiting: the big pots survey is still going on. vanderbilt university and dysautonomia international sponsored survey. the study's lead investigator is dr. satish raj, md msci, adjunct professor of medicine at vanderbilt university's autonomic dysfunction center. dr. raj says that the information collected as part of this survey "will help us learn more about the possible underlying causes and risk factors for developing pots, treatments, and the economic, educational and social impact of pots on patients and their families." dr raj serves on the medical advisory board for dinet and dysautonomia international. go directly to the survey what's new... news & information new info: complex regional pain syndrome , type 1 - diagnosis and management. https://www.ncbi.nlm.nih.gov/pubmed/29409405?_ga=2.71311891.1204982470.1531704876-989465291.1526426607 study results: a presentation made by the american association for cancer research at their annual meeting reported findings related to health risks in post-menopausal women using medication for high blood pressure. the report claims an increased risk of pancreatic cancer in post-menopausal women using short-acting calcium channel blocking medications for their blood pressure treatment. read the information from the aacr. study results: ne journal of medicine releasing study results for episodic migraine treatment using erenunab. the publication is reporting a 50% or greater reduction in the average number of migraine days per month. read more about this study study results: physical maneuvers are viewed as important and promising strategies for reducing recurring episodes of syncope in vasovagal syncope patients . read the result of the study published jan. 2018 study results: university of alberta & mcgill university release their findings for a new therapeutic agent that may hold the potential for the prevention of ms article synopsis: https://bit.ly/2ghf5fk research article: https://insight.jci.org/articles/view/98410 study results: could gut bacteria be the key to preventing autoimmune disorders? researchers from yale, new haven, ct are reporting that discovery that bacteria in the small intestine can travel to other organs and induce an autoimmune response. they also are reporting that antibiotic treatment or vaccine may be the key to combating this reaction. the study results were originally published in the journal science. this article from medical news today gives a synopsis of the findings and links to the full study. https://www.medicalnewstoday.com/articles/321157.php genomics and health impact blog - a discussion about gene testing from the cdc there have been enormous contributions towards disease prevention in women's health, in particular, the development of consumer testing for the brca gene. the benefits cannot be applauded enough. however, health protection & research organ

URL analysis for dinet.org


https://www.dinet.org/content/information-resources/dinet-newsletters-r41/
https://www.dinet.org/get-involved/volunteer/
https://www.dinet.org/content/information-resources/studies/studies-r107/
https://www.dinet.org/profile/44001-weary/
https://www.dinet.org/physicians/?do=form&d=3
https://www.dinet.org/guidelines/
https://www.dinet.org/forums/topic/29520-dreading-tomorrows-blood-tests/?do=getnewcomment
https://www.dinet.org/forums/topic/29516-icy-toes/?do=getnewcomment
https://www.dinet.org/content/information-resources/ncs/
https://www.dinet.org/profile/42951-wintersown/
https://www.dinet.org/leaderboard/
https://www.dinet.org/discover/
https://www.dinet.org/content/member-stories/
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Whois Information


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Domain Name: DINET.ORG
Registry Domain ID: D87305495-LROR
Registrar WHOIS Server: whois.godaddy.com
Registrar URL: http://www.whois.godaddy.com
Updated Date: 2017-07-22T09:26:23Z
Creation Date: 2002-06-06T18:02:18Z
Registry Expiry Date: 2021-06-06T18:02:18Z
Registrar Registration Expiration Date:
Registrar: GoDaddy.com, LLC
Registrar IANA ID: 146
Registrar Abuse Contact Email: [email protected]
Registrar Abuse Contact Phone: +1.4806242505
Reseller:
Domain Status: clientDeleteProhibited https://icann.org/epp#clientDeleteProhibited
Domain Status: clientRenewProhibited https://icann.org/epp#clientRenewProhibited
Domain Status: clientTransferProhibited https://icann.org/epp#clientTransferProhibited
Domain Status: clientUpdateProhibited https://icann.org/epp#clientUpdateProhibited
Registrant Organization: Dysautonomia Information Network
Registrant State/Province: New Hampshire
Registrant Country: US
Name Server: NS1.INVISIONCIC.COM
Name Server: NS2.INVISIONCIC.COM
Name Server: NS3.INVISIONCIC.COM
Name Server: NS4.INVISIONCIC.COM
DNSSEC: unsigned
URL of the ICANN Whois Inaccuracy Complaint Form https://www.icann.org/wicf/)
>>> Last update of WHOIS database: 2018-07-31T00:27:54Z <<<

For more information on Whois status codes, please visit https://icann.org/epp

Access to Public Interest Registry WHOIS information is provided to assist persons in determining the contents of a domain name registration record in the Public Interest Registry registry database. The data in this record is provided by Public Interest Registry for informational purposes only, and Public Interest Registry does not guarantee its accuracy. This service is intended only for query-based access. You agree that you will use this data only for lawful purposes and that, under no circumstances will you use this data to (a) allow, enable, or otherwise support the transmission by e-mail, telephone, or facsimile of mass unsolicited, commercial advertising or solicitations to entities other than the data recipient's own existing customers; or (b) enable high volume, automated, electronic processes that send queries or data to the systems of Registry Operator, a Registrar, or Afilias except as reasonably necessary to register domain names or modify existing registrations. All rights reserved. Public Interest Registry reserves the right to modify these terms at any time. By submitting this query, you agree to abide by this policy.

Please query the RDDS service of the Registrar of Record identified in this output for information on how to contact the Registrant, Admin, or Tech contact of the queried domain name.

  REFERRER http://www.pir.org/

  REGISTRAR Public Interest Registry

SERVERS

  SERVER org.whois-servers.net

  ARGS dinet.org

  PORT 43

  TYPE domain

DOMAIN

  NAME dinet.org

  HANDLE D87305495-LROR

  CREATED 2002-06-06

STATUS
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OWNER

  ORGANIZATION Dysautonomia Information Network

ADDRESS

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  COUNTRY US

  REGISTERED yes

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